A Seat Around the Table: Participatory Data Analysis with People Living With Dementia

Charlotte Clarke, Heather Wilkinson, Julie Watson, Jane Wilcockson, Lindsey Kinnaird, Toby Williamson

Research output: Contribution to journalArticlepeer-review

36 Citations (Scopus)
17 Downloads (Pure)


The involvement of ‘people with experience’ in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention – in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (1) analysed data through two theoretical lenses: Douglas’ cultural theory of risk and Tronto’s Ethic of Care, and (2) analysed data in workshops with people living with dementia. The design involved cycles of presenting, interpreting, representing and reinterpreting the data and findings between multiple stakeholders. We explore ways of involving people with experience as co-analysts and explore the role of reflexivity, multiple voicing, literary styling and performance in participatory data analysis.
Original languageEnglish
Pages (from-to)1421-1433
JournalQualitative Health Research
Issue number9
Early online date16 May 2018
Publication statusPublished - 1 Jul 2018
Externally publishedYes


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