“Being a carer, you just get forgotten!”: exploring the experiences and opportunities of informal primary carers in Australia

Fleur Sharafizad, Esme Franken, Uma Jogulu, Stephen Teo

Research output: Contribution to journalArticlepeer-review

1 Downloads (Pure)


Despite the reported positive impact of informal personal care on the cared for, carers themselves experience a range of adverse health outcomes. In addition, Australian care policies primarily target the cared for, while the needs of carers tend to be disregarded. This article draws on data collected from 36 interviews with carers who were offered an opportunity to engage in a pilot training programme focused on enhancing opportunities. Viewed through the lens of self-determination theory, the training served as a stimulus in supporting carers’ psychological needs, demonstrating that more targeted, nuanced and meaningful supports are required to maintain carers’ motivation and well-being.
Original languageEnglish
Pages (from-to)1-17
Number of pages17
JournalInternational Journal of Care and Caring
Early online date14 Apr 2023
Publication statusE-pub ahead of print - 14 Apr 2023

Cite this