Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned

Juan F. Maestre; Elizabeth V. Eikey; Mark Warner; Svetlana Yarosh; Jessica Pater; Maia Jacobs; Gabriela Marcu; Patrick C. Shih

doi:10.1145/3272973.3273003

Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned

Juan F. Maestre, Elizabeth V. Eikey, Mark Warner, Svetlana Yarosh, Jessica Pater, Maia Jacobs, Gabriela Marcu, Patrick C. Shih

Computer and Information Sciences Department

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

28 Citations (Scopus)

33 Downloads (Pure)

Abstract

Conducting research with communities who are at risk of being stigmatized can be a challenging endeavor. It is often difficult to reach and recruit individuals for research purposes regarding a stigmatized condition or situation. Yet, researchers in our field have recognized the importance of work in this area and have individually developed a range of strategies to reach, recruit, and work with these populations. This workshop will invite researchers and practitioners to present, discuss, and compare strategies and experiences when working with stigmatized communities in the context of the ever-evolving nature of technology. The outcomes of the workshop will include an outline for an article that will summarize the strategies and practices discussed as well as identify the approaches that have led to the best outcomes across different populations.

Original language	English
Title of host publication	Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '18
Subtitle of host publication	November 3–7, 2018, Jersey City, NJ, USA
Place of Publication	New York
Publisher	ACM
Pages	385-392
Number of pages	8
ISBN (Print)	9781450360180
DOIs	https://doi.org/10.1145/3272973.3273003
Publication status	Published - 30 Oct 2018
Event	2018 ACM Conference on Computer Supported Cooperative Work and Social Computing - Hyatt Regency, Jersey City, United States Duration: 3 Nov 2018 → 7 Nov 2018 http://cscw.acm.org/2018/

Conference

Conference	2018 ACM Conference on Computer Supported Cooperative Work and Social Computing
Abbreviated title	CSCW '18
Country/Territory	United States
City	Jersey City
Period	3/11/18 → 7/11/18
Internet address	http://cscw.acm.org/2018/

Keywords

stigma
stigmatized populations
research with stigmatized populations

Access to Document

10.1145/3272973.3273003

Maestre et al - Conducting Research with Stigmatized Populations AAMAccepted author manuscript, 62.5 KB

Cite this

Maestre, J. F., Eikey, E. V., Warner, M., Yarosh, S., Pater, J., Jacobs, M., Marcu, G., & Shih, P. C. (2018). Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned. In Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '18: November 3–7, 2018, Jersey City, NJ, USA (pp. 385-392). ACM. https://doi.org/10.1145/3272973.3273003

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abstract = "Conducting research with communities who are at risk of being stigmatized can be a challenging endeavor. It is often difficult to reach and recruit individuals for research purposes regarding a stigmatized condition or situation. Yet, researchers in our field have recognized the importance of work in this area and have individually developed a range of strategies to reach, recruit, and work with these populations. This workshop will invite researchers and practitioners to present, discuss, and compare strategies and experiences when working with stigmatized communities in the context of the ever-evolving nature of technology. The outcomes of the workshop will include an outline for an article that will summarize the strategies and practices discussed as well as identify the approaches that have led to the best outcomes across different populations.",

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Maestre, JF, Eikey, EV, Warner, M, Yarosh, S, Pater, J, Jacobs, M, Marcu, G & Shih, PC 2018, Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned. in Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '18: November 3–7, 2018, Jersey City, NJ, USA. ACM, New York, pp. 385-392, 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing, Jersey City, New Jersey, United States, 3/11/18. https://doi.org/10.1145/3272973.3273003

Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned. / Maestre, Juan F.; Eikey, Elizabeth V.; Warner, Mark et al.
Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '18: November 3–7, 2018, Jersey City, NJ, USA. New York: ACM, 2018. p. 385-392.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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Maestre JF, Eikey EV, Warner M, Yarosh S, Pater J, Jacobs M et al. Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned. In Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '18: November 3–7, 2018, Jersey City, NJ, USA. New York: ACM. 2018. p. 385-392 doi: 10.1145/3272973.3273003

Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned

Abstract

Conference

Keywords

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