TY - JOUR
T1 - Dialysis, Distress, and Difficult Conversations
T2 - Living with a Kidney Transplant
AU - McKeaveney, Clare
AU - Noble, Helen
AU - Courtney, Aisling E.
AU - Griffin, Sian
AU - Gill, Paul
AU - Johnston, William
AU - Maxwell, Alexander P.
AU - Teasdale, Francesca
AU - Reid, Joanne
N1 - Funding information: Funding: This research was funded jointly by UK Kidney Association and Kidney Care UK, grant number 19-004.
PY - 2022/6/23
Y1 - 2022/6/23
N2 - Background: Providing holistic care to kidney patients is important; however, without full consideration of the perspectives of people living with a kidney transplant, the provision of truly ‘holistic healthcare’ cannot be possible. It is imperative to understand patient experiences by including kidney patients in key strategies and future renal service planning. Ignoring these important patient views means that there is a significant risk of inappropriate renal service provision and lack of adequate support, impacting overall health. The aim of this study was to develop an in-depth understanding of the lived experiences of kidney transplant recipients. Methods: A total of 23 participants were recruited between two regional nephrology units within the United Kingdom via clinical gatekeepers. In-depth interviews were undertaken. Interviews were digitally recorded, transcribed verbatim, and subjected to interpretative phenomenological analysis. Results: Two themes emerged: “managing ongoing fears of dialysis, distress, and COVID-19” and “dealing with difficult conversations”. Conclusions: Renal healthcare professionals need to understand more than the biological impact of receiving a kidney transplant. Understanding the holistic and multidomain experiences that these participants experience will help healthcare professionals to recognize the needs of this group and ensure more responsive psychosocial care.
AB - Background: Providing holistic care to kidney patients is important; however, without full consideration of the perspectives of people living with a kidney transplant, the provision of truly ‘holistic healthcare’ cannot be possible. It is imperative to understand patient experiences by including kidney patients in key strategies and future renal service planning. Ignoring these important patient views means that there is a significant risk of inappropriate renal service provision and lack of adequate support, impacting overall health. The aim of this study was to develop an in-depth understanding of the lived experiences of kidney transplant recipients. Methods: A total of 23 participants were recruited between two regional nephrology units within the United Kingdom via clinical gatekeepers. In-depth interviews were undertaken. Interviews were digitally recorded, transcribed verbatim, and subjected to interpretative phenomenological analysis. Results: Two themes emerged: “managing ongoing fears of dialysis, distress, and COVID-19” and “dealing with difficult conversations”. Conclusions: Renal healthcare professionals need to understand more than the biological impact of receiving a kidney transplant. Understanding the holistic and multidomain experiences that these participants experience will help healthcare professionals to recognize the needs of this group and ensure more responsive psychosocial care.
KW - holistic
KW - interpretative phenomenological analysis
KW - kidney
KW - qualitative
KW - transplant
KW - wellbeing
UR - http://www.scopus.com/inward/record.url?scp=85133126514&partnerID=8YFLogxK
U2 - 10.3390/healthcare10071177
DO - 10.3390/healthcare10071177
M3 - Article
AN - SCOPUS:85133126514
SN - 2227-9032
VL - 10
SP - 1
EP - 9
JO - Healthcare (Switzerland)
JF - Healthcare (Switzerland)
IS - 7
M1 - 1177
ER -