Facilitating social coping-‘seeking emotional and practical support from others’-as a critical strategy in maintaining the family care of people with dementia

Mark Parkinson*, Susan Carr, Clare Abley

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Citations (Scopus)
74 Downloads (Pure)

Abstract

The aim of this study was to identify how the family care of people living with dementia could be supported to make reliance on family care sustainable in the long term despite the impact of stress. A Realist Evaluation (Pawson & Tilley, 1997) was conducted to investigate this aim. An initial review established ‘coping’ as a primary means of mediating stressors associated with caregiving. However, there was a need to specify which coping approaches/strategies are most effective. In‐depth interviews were conducted with a purposive sample of family carers (n = 18) in a suburb in North East England from 2016 to 2017. Analysis of the data revealed ‘social coping’ (SC) that included an emotional support component as a critical mediator of family carer stress. Several key hindrances to the utilisation of SC, including underpinning causal factors, are explicated. Ways in which these hindrances might be overcome are discussed and guidelines introduced for how family carers, formal providers and practitioners can facilitate SC as a critical coping strategy in sustaining the family care of people with dementia over the long term.
Original languageEnglish
Pages (from-to)558-569
Number of pages12
JournalHealth & Social Care in the Community
Volume30
Issue number2
Early online date22 Sept 2020
DOIs
Publication statusPublished - 1 Feb 2022

Keywords

  • Realist Evaluation
  • coping strategies
  • dementia
  • family carers
  • social coping
  • sustaining family care
  • Social Sciences (miscellaneous)
  • Public Health, Environmental and Occupational Health
  • Sociology and Political Science
  • Health Policy

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