Abstract
Little is known about the respective experience of fathers and mothers within couples when managing their child's long-term medical condition. This study therefore aimed to obtain and compare fathers' and mothers' accounts of managing long-term kidney conditions. Qualitative study involving individual then joint semi-structured interviews with 14 couples (biological fathers and mothers of 15 children whose care is managed at a specialist unit). Interviews were digitally recorded, transcribed and analysed using Framework Analysis. Transcripts within and across couples were compared. Developing skills for home-based caregiving of long-term conditions is a challenging and uncertain process. Both parents often participate in caregiving, and the findings reported here may help professionals decide how best to support both parents in their home-based caregiving.
Original language | English |
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Pages (from-to) | 512-523 |
Journal | Child: Care, Health and Development |
Volume | 37 |
Issue number | 4 |
DOIs | |
Publication status | Published - 6 Mar 2011 |
Keywords
- chronic (health) conditions
- development
- fathers
- mothers
- skills