How Adults With an Intellectual Disability Experience Bereavement and Grief: A Qualitative Exploration

Robyn McRitchie, Karen McKenzie, Ethel Quayle, Margaret Harlin, Katja Neumann

Research output: Contribution to journalArticlepeer-review

16 Citations (Scopus)
4 Downloads (Pure)

Abstract

This qualitative study explored the lived experiences of bereavement of 13 adults with an intellectual disability and found that their experiences could be situated within the concept of disenfranchised grief. The latter mediated participants' meaning making of the grieving process illustrated in the themes of intra- and interpersonal bereavement experiences, core beliefs about life and death, level of inclusion, and maintaining a continuing relationship with the deceased. The results suggest that participants experience bereavement and grief in a manner similar to that of the general population and suggest the need for open communication, facilitation of informed choice, and a culture of inclusion.
Original languageEnglish
Pages (from-to)179-185
JournalDeath Studies
Volume38
Issue number3
DOIs
Publication statusPublished - 1 Apr 2014

Fingerprint Dive into the research topics of 'How Adults With an Intellectual Disability Experience Bereavement and Grief: A Qualitative Exploration'. Together they form a unique fingerprint.

Cite this