How does community engagement evolve in different compassionate community contexts? A longitudinal comparative ethnographic research protocol

Émilie Lessard*, Isabelle Marcoux, Serge Daneault, Andreea-Catalina Penaite, Lisa Jean, Melodie Talbot, Dale Weil, Ghislaine Rouly, Libby Sallnow, Allan Kellehear, Antoine Bouvin

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

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Compassionate communities build on health promoting palliative care that aims to address gaps in access, quality, and continuity of care in the context of dying, death, loss, and grief. While community engagement is a core principle of public health palliative care, it has received little attention in empirical studies of compassionate communities.
The objectives of this research are to describe the process of community engagement initiated by two compassionate communities projects, to understand the influence of contextual factors on community engagement over time, and assess the contribution of community engagement on proximal outcomes and the potential for sustaining compassionate communities.
Research Approach and Design:
We use a community-based participatory action-research approach to study two compassionate communities initiatives in Montreal (Canada). We develop a longitudinal comparative ethnographic design to study how community engagement evolves in different compassionate communities contexts.
Methods and Analysis:
Data collection includes focus groups, review of key documents and project logbooks, participant observation, semi-structured interviews with key informants, and questionnaires with a focus on community engagement. Grounded in the ecology of engagement theory and the Canadian compassionate communities evaluation framework, data analysis is structured around longitudinal and comparative axes to assess the evolution of community engagement over time and to explore the contextual factors influencing the process of community engagement and its impacts according to local context.
Original languageEnglish
Pages (from-to)1-13
Number of pages13
JournalPalliative Care and Social Practice
Early online date21 Apr 2023
Publication statusPublished - 2023
Externally publishedYes

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