Improving participation outcomes and interventions in neurodisability: co‐designing future research

Jennifer McAnuff*, Rob Brooks, Catherine J. Duff, Maria Quinn, Joanne Marshall, Niina Kolehmainen

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

9 Citations (Scopus)

Abstract

There is an urgent, agreed need to improve participation outcomes and interventions for children and young people with neurodisability. We worked together with service users and providers to design research into participation outcomes and interventions in neurodisability. We built on existing evidence about participation outcomes and interventions and the WHO International Classification of Functioning, Disability and Health. We: (1) specified seven participation outcome categories for measurement; (2) prioritized these for improvement: self‐care, friends and social, and physical activity ranked the highest; (3) identified 11 potential intervention categories for targeting the top priority, self‐care, through eight hypothesized change mechanisms and agreed for the interventions to be delivered as a ‘Menu of Interventions’ for personalized self‐care support; and (4) designed a before‐and‐after mixed methods feasibility study to evaluate the Menu with children and young people (0–12 years) and their parents and therapists.
Original languageEnglish
Pages (from-to)298-306
Number of pages9
JournalChild: Care, Health and Development
Volume43
Issue number2
Early online date21 Oct 2016
DOIs
Publication statusPublished - 1 Mar 2017
Externally publishedYes

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