Abstract
Background
Stroke survivors are a population at increased risk of experiencing loneliness, thus exploring the effect of lockdown measures on stroke survivors is of paramount importance. We explored the personal experiences of loneliness among stroke survivors during lockdown in the COVID-19 pandemic and the lessons that can be learned from these experiences.
Methods
Seventeen stroke survivors from across the United Kingdom (10 females, 7 males; 45–83 years old; Mage = 63.47) participated in semi-structured interviews. Reflexive thematic analysis was employed in the interpretation of the data.
Results
Three overarching themes were constructed: (1) hidden struggles, isolated lives; (2) divergent experiences and adaptations; and (3) rebuilding after lockdown. These themes explore survivors’ experiences of loneliness generally after stroke and how this loneliness was assuaged with online video conferencing and other technological solutions. They also chronicle how these feelings changed during lockdown and survivors’ feelings regarding society returning to ‘normal’ and the associated apprehension and anxiety this brings.
Conclusions
We recommend a focus on improving understanding of the challenges faced after stroke to reduce stigma, increase empathy and promote inclusive attitudes within society, alongside better pandemic preparedness through engagement with hybrid support solutions.
Stroke survivors are a population at increased risk of experiencing loneliness, thus exploring the effect of lockdown measures on stroke survivors is of paramount importance. We explored the personal experiences of loneliness among stroke survivors during lockdown in the COVID-19 pandemic and the lessons that can be learned from these experiences.
Methods
Seventeen stroke survivors from across the United Kingdom (10 females, 7 males; 45–83 years old; Mage = 63.47) participated in semi-structured interviews. Reflexive thematic analysis was employed in the interpretation of the data.
Results
Three overarching themes were constructed: (1) hidden struggles, isolated lives; (2) divergent experiences and adaptations; and (3) rebuilding after lockdown. These themes explore survivors’ experiences of loneliness generally after stroke and how this loneliness was assuaged with online video conferencing and other technological solutions. They also chronicle how these feelings changed during lockdown and survivors’ feelings regarding society returning to ‘normal’ and the associated apprehension and anxiety this brings.
Conclusions
We recommend a focus on improving understanding of the challenges faced after stroke to reduce stigma, increase empathy and promote inclusive attitudes within society, alongside better pandemic preparedness through engagement with hybrid support solutions.
| Original language | English |
|---|---|
| Article number | IB23111 |
| Number of pages | 8 |
| Journal | Brain Impairment |
| Volume | 25 |
| Issue number | 3 |
| DOIs | |
| Publication status | Published - 14 Jun 2024 |
Keywords
- COVID-19
- hidden disability
- loneliness
- qualitative methods
- social integration
- social isolation
- stroke
- thematic analysis
