Mapping Care: A Case Study of Dementia Service Provision in the North East of England

Daniel Carey; Paul Rodgers; Andy Tennant; Katie Dodd

Mapping Care: A Case Study of Dementia Service Provision in the North East of England

Daniel Carey^*, Paul Rodgers, Andy Tennant, Katie Dodd

^*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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Abstract

This paper reports on the first author’s ongoing Arts and Humanities Research Council (AHRC) funded PhD research, exploring the potential for design disruption interventions within the context of informal health and social care.

The paper describes a specific project to map the experiences of people caring for dementia patients, exploring their interactions with governmental and charitable support organisations, their perception of the services available to them, and other informal methods they employed to cope with the caring role.

The findings offer a new way of visualising the complex interrelationships between these organisations, and highlight a number of important issues faced by informal carers. These include a pressing need for clearer, more accessible support pathways, clarification of the role and duties of some support organisations, and the value of intangible forms of assistance such as emotional support. These findings will form the basis for future disruptive design interventions in this area.

Original language	English
Title of host publication	Service Design Geographies
Subtitle of host publication	Proceedings of the ServDes.2016 Conference
Editors	Nicola Morelli, Amalia de Götzen, Francesco Grani
Place of Publication	Linköping
Publisher	Linkoping University Electronic Press
Pages	376-389
Number of pages	14
ISBN (Electronic)	9789176857380
Publication status	Published - 17 May 2016
Event	Service Design Geographies Conference 2016 - Aalborg University Copenhagen, Copenhagen, Denmark Duration: 24 May 2016 → 26 May 2016 http://www.ep.liu.se/ecp/125/ecp16125.pdf

Publication series

Name	Linköping Electronic Conference Proceedings
Publisher	Linköping University Electronic Press
Number	125
ISSN (Print)	1650-3686
ISSN (Electronic)	1650-3740

Conference

Conference	Service Design Geographies Conference 2016
Abbreviated title	ServDes.2016
Country/Territory	Denmark
City	Copenhagen
Period	24/05/16 → 26/05/16
Internet address	http://www.ep.liu.se/ecp/125/ecp16125.pdf

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ecp16125031Final published version, 4.01 MB

https://ep.liu.se/ecp/article.asp?issue=125&article=031&volume=0

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Carey, D., Rodgers, P., Tennant, A., & Dodd, K. (2016). Mapping Care: A Case Study of Dementia Service Provision in the North East of England. In N. Morelli, A. de Götzen, & F. Grani (Eds.), Service Design Geographies: Proceedings of the ServDes.2016 Conference (pp. 376-389). [031] (Linköping Electronic Conference Proceedings; No. 125). Linkoping University Electronic Press. https://ep.liu.se/ecp/article.asp?issue=125&article=031&volume=0

Carey, Daniel ; Rodgers, Paul ; Tennant, Andy et al. / Mapping Care: A Case Study of Dementia Service Provision in the North East of England. Service Design Geographies: Proceedings of the ServDes.2016 Conference. editor / Nicola Morelli ; Amalia de Götzen ; Francesco Grani. Linköping : Linkoping University Electronic Press, 2016. pp. 376-389 (Linköping Electronic Conference Proceedings; 125).

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title = "Mapping Care: A Case Study of Dementia Service Provision in the North East of England",

abstract = "This paper reports on the first author{\textquoteright}s ongoing Arts and Humanities Research Council (AHRC) funded PhD research, exploring the potential for design disruption interventions within the context of informal health and social care.The paper describes a specific project to map the experiences of people caring for dementia patients, exploring their interactions with governmental and charitable support organisations, their perception of the services available to them, and other informal methods they employed to cope with the caring role.The findings offer a new way of visualising the complex interrelationships between these organisations, and highlight a number of important issues faced by informal carers. These include a pressing need for clearer, more accessible support pathways, clarification of the role and duties of some support organisations, and the value of intangible forms of assistance such as emotional support. These findings will form the basis for future disruptive design interventions in this area.",

keywords = "design disruption, mapping, health, social care, informal, intervention, carer, dementia, visualization, timeline, PhD, research, experience",

author = "Daniel Carey and Paul Rodgers and Andy Tennant and Katie Dodd",

note = "The authors gratefully acknowledge the generous funding provided by the AHRC, without which this research could not have been undertaken. Thanks go to the staff and volunteers at Newcastle Carers, who played a crucial role in developing the ideas behind this research, and to the Alzheimer{\textquoteright}s Society for assisting in identifying suitable interviewees. The authors are extremely grateful to each of the carers who generously donated their time and expertise to help create these maps.; Service Design Geographies Conference 2016, ServDes.2016 ; Conference date: 24-05-2016 Through 26-05-2016",

year = "2016",

month = may,

day = "17",

language = "English",

series = "Link{\"o}ping Electronic Conference Proceedings",

publisher = "Linkoping University Electronic Press",

number = "125",

pages = "376--389",

editor = "Nicola Morelli and {de G{\"o}tzen}, Amalia and Francesco Grani",

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Carey, D, Rodgers, P, Tennant, A & Dodd, K 2016, Mapping Care: A Case Study of Dementia Service Provision in the North East of England. in N Morelli, A de Götzen & F Grani (eds), Service Design Geographies: Proceedings of the ServDes.2016 Conference., 031, Linköping Electronic Conference Proceedings, no. 125, Linkoping University Electronic Press, Linköping, pp. 376-389, Service Design Geographies Conference 2016, Copenhagen, Denmark, 24/05/16. <https://ep.liu.se/ecp/article.asp?issue=125&article=031&volume=0>

Mapping Care: A Case Study of Dementia Service Provision in the North East of England. / Carey, Daniel; Rodgers, Paul; Tennant, Andy et al.

Service Design Geographies: Proceedings of the ServDes.2016 Conference. ed. / Nicola Morelli; Amalia de Götzen; Francesco Grani. Linköping : Linkoping University Electronic Press, 2016. p. 376-389 031 (Linköping Electronic Conference Proceedings; No. 125).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

TY - GEN

T1 - Mapping Care: A Case Study of Dementia Service Provision in the North East of England

AU - Carey, Daniel

AU - Rodgers, Paul

AU - Tennant, Andy

AU - Dodd, Katie

N1 - The authors gratefully acknowledge the generous funding provided by the AHRC, without which this research could not have been undertaken. Thanks go to the staff and volunteers at Newcastle Carers, who played a crucial role in developing the ideas behind this research, and to the Alzheimer’s Society for assisting in identifying suitable interviewees. The authors are extremely grateful to each of the carers who generously donated their time and expertise to help create these maps.

PY - 2016/5/17

Y1 - 2016/5/17

N2 - This paper reports on the first author’s ongoing Arts and Humanities Research Council (AHRC) funded PhD research, exploring the potential for design disruption interventions within the context of informal health and social care.The paper describes a specific project to map the experiences of people caring for dementia patients, exploring their interactions with governmental and charitable support organisations, their perception of the services available to them, and other informal methods they employed to cope with the caring role.The findings offer a new way of visualising the complex interrelationships between these organisations, and highlight a number of important issues faced by informal carers. These include a pressing need for clearer, more accessible support pathways, clarification of the role and duties of some support organisations, and the value of intangible forms of assistance such as emotional support. These findings will form the basis for future disruptive design interventions in this area.

AB - This paper reports on the first author’s ongoing Arts and Humanities Research Council (AHRC) funded PhD research, exploring the potential for design disruption interventions within the context of informal health and social care.The paper describes a specific project to map the experiences of people caring for dementia patients, exploring their interactions with governmental and charitable support organisations, their perception of the services available to them, and other informal methods they employed to cope with the caring role.The findings offer a new way of visualising the complex interrelationships between these organisations, and highlight a number of important issues faced by informal carers. These include a pressing need for clearer, more accessible support pathways, clarification of the role and duties of some support organisations, and the value of intangible forms of assistance such as emotional support. These findings will form the basis for future disruptive design interventions in this area.

KW - design disruption

KW - mapping

KW - health

KW - social care

KW - informal

KW - intervention

KW - carer

KW - dementia

KW - visualization

KW - timeline

KW - PhD

KW - research

KW - experience

M3 - Conference contribution

T3 - Linköping Electronic Conference Proceedings

SP - 376

EP - 389

BT - Service Design Geographies

A2 - Morelli, Nicola

A2 - de Götzen, Amalia

A2 - Grani, Francesco

PB - Linkoping University Electronic Press

CY - Linköping

T2 - Service Design Geographies Conference 2016

Y2 - 24 May 2016 through 26 May 2016

ER -

Carey D, Rodgers P, Tennant A, Dodd K. Mapping Care: A Case Study of Dementia Service Provision in the North East of England. In Morelli N, de Götzen A, Grani F, editors, Service Design Geographies: Proceedings of the ServDes.2016 Conference. Linköping: Linkoping University Electronic Press. 2016. p. 376-389. 031. (Linköping Electronic Conference Proceedings; 125).

Mapping Care: A Case Study of Dementia Service Provision in the North East of England

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