ReFind: Design, Lived Experience and Ongoingness in Bereavement

Jayne Wallace; Kyle Montague; Trevor Duncan; Luis P Cavalho; Nantia Koulidou; Jamie Mahoney; Kellie Morrissey; Claire Craig; Linnea Groot; Shaun Lawson; Patrick Olivier; Julie Trueman; Helen  Fisher

doi:10.1145/3313831.3376531

ReFind: Design, Lived Experience and Ongoingness in Bereavement

Jayne Wallace, Kyle Montague, Trevor Duncan, Luis P Cavalho, Nantia Koulidou, Jamie Mahoney, Kellie Morrissey, Claire Craig, Linnea Groot, Shaun Lawson, Patrick Olivier, Julie Trueman, Helen Fisher

Computer and Information Sciences Department

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

22 Citations (Scopus)

60 Downloads (Pure)

Abstract

We describe the design and use of ReFind, a handheld artefact made for people who are bereaved and are ready to re-explore their relationship to the deceased person. ReFind was made within a project seeking to develop new ways to curate and create digital media to support ongoingness – an active, dynamic component of continuing bonds. We draw on bereavement theory and care championing practices that enable a continued sense of connection between someone bereaved and a person who has died. We present the design development of ReFind and the lived experience of the piece by the first author. We discuss our wider methodology which includes autobiographical design and reflections on if and how the piece supported ongoing connections, the challenges faced, and insights gained.

Original language	English
Title of host publication	Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20): April 25–30, 2020, Honolulu, HI, USA
Publisher	ACM
Pages	1-12
ISBN (Electronic)	9781450367080
ISBN (Print)	9781450367080
DOIs	https://doi.org/10.1145/3313831.3376531
Publication status	Published - 25 Apr 2020
Event	2020 ACM CHI Conference on Human Factors in Computing Systems, CHI EA 2020 - Hawaiʻi Convention Center, Honolulu, United States Duration: 25 Apr 2020 → 30 Apr 2020 https://chi2020.acm.org/

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings

Conference

Conference	2020 ACM CHI Conference on Human Factors in Computing Systems, CHI EA 2020
Abbreviated title	CHI 2020
Country/Territory	United States
City	Honolulu
Period	25/04/20 → 30/04/20
Internet address	https://chi2020.acm.org/

Keywords

autobiographical
autoethnography
bereavement
continuing bonds
death
design
digital images
grief
lived experience
ongoingness
photographs
physical/digital
relational selves

Access to Document

10.1145/3313831.3376531

ReFind_CHI_08_01_20_camera_ready_final_versionAccepted author manuscript, 2.27 MB

22 Citations
2 Article
1 Book
1 Paper

Enabling Ongoingness: Exploring the potential for newness in continuing bonds
Wallace, J. & South, J., 2022, Newcastle upon Tyne: Northumbria University. 350 p.
Research output: Book/Report › Book

Open Access
File
Design research to support ongoingness
Wallace, J., Duncan, T., Lawson, S., Trueman, J., Montague, K., Carvalho, L., Groot, L., Craig, C., Fisher, H. & Koulidou, N., 2020, In: Bereavement Care. 39, 2, p. 88-92 5 p.
Research output: Contribution to journal › Article › peer-review
2 Citations (Scopus)
‘Blueprints’ physical to digital: curation of media to support ongoingness
Wallace, J., Koulidou, N., Duncan, T., Lawson, S., Trueman, J., Craig, C., Fisher, H., Morrissey, K., Montague, K. & Welch, D., 22 Apr 2019, (E-pub ahead of print).
Research output: Contribution to conference › Paper › peer-review

Open Access

Best Paper Award
Wallace, Jayne (Recipient), Montague, Kyle (Recipient) & Duncan, Trevor (Recipient), 2020
Prize

Cite this

Wallace, J., Montague, K., Duncan, T., Cavalho, L. P., Koulidou, N., Mahoney, J., Morrissey, K., Craig, C., Groot, L., Lawson, S., Olivier, P., Trueman, J., & Fisher, H. (2020). ReFind: Design, Lived Experience and Ongoingness in Bereavement. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20): April 25–30, 2020, Honolulu, HI, USA (pp. 1-12). Article 3376531 (Conference on Human Factors in Computing Systems - Proceedings). ACM. https://doi.org/10.1145/3313831.3376531

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abstract = "We describe the design and use of ReFind, a handheld artefact made for people who are bereaved and are ready to re-explore their relationship to the deceased person. ReFind was made within a project seeking to develop new ways to curate and create digital media to support ongoingness – an active, dynamic component of continuing bonds. We draw on bereavement theory and care championing practices that enable a continued sense of connection between someone bereaved and a person who has died. We present the design development of ReFind and the lived experience of the piece by the first author. We discuss our wider methodology which includes autobiographical design and reflections on if and how the piece supported ongoing connections, the challenges faced, and insights gained. ",

keywords = "autobiographical, autoethnography, bereavement, continuing bonds, death, design, digital images, grief, lived experience, ongoingness, photographs, physical/digital, relational selves",

author = "Jayne Wallace and Kyle Montague and Trevor Duncan and Cavalho, {Luis P} and Nantia Koulidou and Jamie Mahoney and Kellie Morrissey and Claire Craig and Linnea Groot and Shaun Lawson and Patrick Olivier and Julie Trueman and Helen Fisher",

note = "Funding Information: This research was funded by the UK research body EPSRC EP/P025609/1 and supported by project partner organisations: Cruse Bereavement Care, Marie Curie, Alzheimer{\textquoteright}s Society, Hospice UK, Dementia Positive, Dementia Care, Dementia Action Alliance, NIHR CLAHRC YH, National Council for Palliative Care and BBC. Publisher Copyright: {\textcopyright} 2020 ACM. Copyright: Copyright 2020 Elsevier B.V., All rights reserved.; 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI EA 2020, CHI 2020 ; Conference date: 25-04-2020 Through 30-04-2020",

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language = "English",

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booktitle = "Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI{\textquoteright}20): April 25–30, 2020, Honolulu, HI, USA",

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Wallace, J , Montague, K, Duncan, T, Cavalho, LP, Koulidou, N, Mahoney, J, Morrissey, K, Craig, C, Groot, L, Lawson, S, Olivier, P, Trueman, J & Fisher, H 2020, ReFind: Design, Lived Experience and Ongoingness in Bereavement. in Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20): April 25–30, 2020, Honolulu, HI, USA., 3376531, Conference on Human Factors in Computing Systems - Proceedings, ACM, pp. 1-12, 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI EA 2020, Honolulu, United States, 25/04/20. https://doi.org/10.1145/3313831.3376531

ReFind: Design, Lived Experience and Ongoingness in Bereavement. / Wallace, Jayne ; Montague, Kyle; Duncan, Trevor et al.
Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20): April 25–30, 2020, Honolulu, HI, USA. ACM, 2020. p. 1-12 3376531 (Conference on Human Factors in Computing Systems - Proceedings).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

TY - GEN

T1 - ReFind: Design, Lived Experience and Ongoingness in Bereavement

AU - Wallace, Jayne

AU - Montague, Kyle

AU - Duncan, Trevor

AU - Cavalho, Luis P

AU - Koulidou, Nantia

AU - Mahoney, Jamie

AU - Morrissey, Kellie

AU - Craig, Claire

AU - Groot, Linnea

AU - Lawson, Shaun

AU - Olivier, Patrick

AU - Trueman, Julie

AU - Fisher, Helen

N1 - Funding Information: This research was funded by the UK research body EPSRC EP/P025609/1 and supported by project partner organisations: Cruse Bereavement Care, Marie Curie, Alzheimer’s Society, Hospice UK, Dementia Positive, Dementia Care, Dementia Action Alliance, NIHR CLAHRC YH, National Council for Palliative Care and BBC. Publisher Copyright: © 2020 ACM. Copyright: Copyright 2020 Elsevier B.V., All rights reserved.

PY - 2020/4/25

Y1 - 2020/4/25

N2 - We describe the design and use of ReFind, a handheld artefact made for people who are bereaved and are ready to re-explore their relationship to the deceased person. ReFind was made within a project seeking to develop new ways to curate and create digital media to support ongoingness – an active, dynamic component of continuing bonds. We draw on bereavement theory and care championing practices that enable a continued sense of connection between someone bereaved and a person who has died. We present the design development of ReFind and the lived experience of the piece by the first author. We discuss our wider methodology which includes autobiographical design and reflections on if and how the piece supported ongoing connections, the challenges faced, and insights gained.

AB - We describe the design and use of ReFind, a handheld artefact made for people who are bereaved and are ready to re-explore their relationship to the deceased person. ReFind was made within a project seeking to develop new ways to curate and create digital media to support ongoingness – an active, dynamic component of continuing bonds. We draw on bereavement theory and care championing practices that enable a continued sense of connection between someone bereaved and a person who has died. We present the design development of ReFind and the lived experience of the piece by the first author. We discuss our wider methodology which includes autobiographical design and reflections on if and how the piece supported ongoing connections, the challenges faced, and insights gained.

KW - autobiographical

KW - autoethnography

KW - bereavement

KW - continuing bonds

KW - death

KW - design

KW - digital images

KW - grief

KW - lived experience

KW - ongoingness

KW - photographs

KW - physical/digital

KW - relational selves

U2 - 10.1145/3313831.3376531

DO - 10.1145/3313831.3376531

M3 - Conference contribution

SN - 9781450367080

T3 - Conference on Human Factors in Computing Systems - Proceedings

SP - 1

EP - 12

BT - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20): April 25–30, 2020, Honolulu, HI, USA

PB - ACM

T2 - 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI EA 2020

Y2 - 25 April 2020 through 30 April 2020

ER -

Wallace J , Montague K, Duncan T, Cavalho LP, Koulidou N, Mahoney J et al. ReFind: Design, Lived Experience and Ongoingness in Bereavement. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20): April 25–30, 2020, Honolulu, HI, USA. ACM. 2020. p. 1-12. 3376531. (Conference on Human Factors in Computing Systems - Proceedings). doi: 10.1145/3313831.3376531

ReFind: Design, Lived Experience and Ongoingness in Bereavement

Abstract

Publication series

Conference

Keywords

Access to Document

Fingerprint

Research output

Enabling Ongoingness: Exploring the potential for newness in continuing bonds

Design research to support ongoingness

‘Blueprints’ physical to digital: curation of media to support ongoingness

Prizes

Best Paper Award

Cite this