Supporting Self-Care of Adolescents with Nut Allergy Through Video and Mobile Educational Tools

Research output: Chapter in Book/Report/Conference proceedingChapter

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Original languageEnglish
Title of host publicationProceedings of CHI 2017
Place of PublicationNew York
PublisherACM
Pages1078-1092
ISBN (Print)978-1-4503-4655-9
DOIs
Publication statusPublished - 6 May 2017
EventCHI 2017 - Denver
Duration: 6 May 2017 → …

Conference

ConferenceCHI 2017
Period6/05/17 → …
Publication type

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Anaphylaxis is a life-threatening allergic reaction which is rapid in onset. Adolescents living with anaphylaxis risk often lack the knowledge and skills required to safely manage their condition or talk to friends about it. We designed an educational intervention comprising group discussion around videos of simulated anaphylaxis scenarios and a mobile application containing video-based branching anaphylaxis narratives. We trialed the intervention with 36 nut allergic adolescents. At 1-year follow-up participants had improved adrenaline auto-injector skills and carriage, disease- and age-specific Quality of Life and confidence in anaphylaxis management. At 3-year follow-up adrenaline carriage improved further and confidence remained higher. Participants expressed how the education session was a turning point in taking control of their allergy and how the app facilitated sharing about anaphylaxis with others. We contribute insights regarding design of mobile self-care and peer-support applications for health in adolescence, and discuss strengths and limitations of video-based mobile health interventions.