The forgotten people in British public health: a national neglect of the dying, bereaved and caregivers

Aliki Karapliagou, Allan Kellehear*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

The clinical and social epidemiology of living with a life-threatening or life-limiting illness, frail ageing, long-term caregiving, and grief and bereavement is well documented in the palliative care, psycho-oncology and psychiatric literature but this investigation asks what interest exists from the mainstream public health sector in these health and illness experiences. This paper reports a content analysis of 7 key British public health journals, 14 major public health textbooks and 3 public health websites employing key word and synonym searches to assess the size and quality of interest in populations related to ageing, dying, caregiving, and grief and bereavement. Compared with other public health issues, such as obesity and tobacco use, for examples, interest in the social experience and epidemiology of end-of-life experiences is extremely low. Reasons for this lack of interest are explored.
Original languageEnglish
Pages (from-to)153-159
Number of pages7
JournalBMJ Supportive and Palliative Care
Volume6
Issue number2
Early online date17 Feb 2016
DOIs
Publication statusPublished - 1 Jun 2016
Externally publishedYes

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