The importance of cancer prevention policies to inform and guide preventative and screening measures for people with intellectual disabilities: The COST project “Cancer- Understanding Prevention in Intellectual Disabilities”

Vladimir Vukovic, Amina Banda, Lara Carneiro, Soner Dogan, Peter Knapp, Martin McMahon, Dragana Milutinovic, Pinar Soylar, Kate Sykes, Betul Tosun, Ayla Yava, Vladimir Trajkovski, John Wells, Maarten Cuypers*

*Corresponding author for this work

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Cancer is a global public health problem, but its exact prevalence in people with intellectual disabilities is still uncertain. This population, with limited health skills and complex health needs, faces many challenges in cancer prevention, screening, timely diagnosis and treatment. Furthermore, they are often underrepresented in general cancer prevention and screening policies across Europe, leading to widened disparities in health outcomes and premature mortality. Thus, unified national and local policies are needed to reduce inequalities and promoting a pan-European inclusion of people with intellectual disabilities. Our goal is to raise public awareness of this issue, including the involvement of people with intellectual disabilities, and promote engagement from relevant stakeholders. The COST Action ‘Cancer- Understanding Prevention in Intellectual Disabilities’ (CUPID) project will address health inequalities faced by people with intellectual disabilities in relation to cancer, and support the development of policy recommendations specifically tailored to their unique cognitive and healthcare needs, having a positive long-term impact on quality of life.
Original languageEnglish
Pages (from-to)1-14
Number of pages14
JournalJournal of Intellectual Disabilities
Early online date9 Nov 2023
Publication statusE-pub ahead of print - 9 Nov 2023

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