Abstract
Across social care, healthcare and public policy, enabled by the "big data" revolution (which has normalized large-scale data-based decision-making), there are moves to "join up" citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-gamebased interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.
Original language | English |
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Title of host publication | CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems |
Subtitle of host publication | Engage with CHI |
Publisher | ACM |
ISBN (Electronic) | 9781450356206, 9781450356213 |
DOIs | |
Publication status | Published - 20 Apr 2018 |
Externally published | Yes |
Event | 2018 ACM Conference on Human Factors in Computing Systems - Palais des Congrès de Montréal, Montréal, Canada Duration: 21 Apr 2018 → 26 Apr 2018 https://chi2018.acm.org/ |
Publication series
Name | Conference on Human Factors in Computing Systems - Proceedings |
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Volume | 2018-April |
Conference
Conference | 2018 ACM Conference on Human Factors in Computing Systems |
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Abbreviated title | CHI 2018 |
Country/Territory | Canada |
City | Montréal |
Period | 21/04/18 → 26/04/18 |
Internet address |