Understanding the family perspective on the storage, sharing and handling of family civic data

Alex Bowyer, Kyle Montague, Stuart Wheater, Ruth McGovern, Raghu Lingam, Madeline Balaam

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

10 Citations (Scopus)

Abstract

Across social care, healthcare and public policy, enabled by the "big data" revolution (which has normalized large-scale data-based decision-making), there are moves to "join up" citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-gamebased interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.

Original languageEnglish
Title of host publicationCHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems
Subtitle of host publicationEngage with CHI
PublisherAssociation for Computing Machinery, Inc
ISBN (Electronic)9781450356206, 9781450356213
DOIs
Publication statusPublished - 20 Apr 2018
Externally publishedYes
Event2018 ACM Conference on Human Factors in Computing Systems - Palais des Congrès de Montréal, Montréal, Canada
Duration: 21 Apr 201826 Apr 2018
https://chi2018.acm.org/

Publication series

NameConference on Human Factors in Computing Systems - Proceedings
Volume2018-April

Conference

Conference2018 ACM Conference on Human Factors in Computing Systems
Abbreviated titleCHI 2018
CountryCanada
CityMontréal
Period21/04/1826/04/18
Internet address

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