Understanding the family perspective on the storage, sharing and handling of family civic data

Alex Bowyer; Kyle Montague; Stuart Wheater; Ruth McGovern; Raghu Lingam; Madeline Balaam

doi:10.1145/3173574.3173710

Understanding the family perspective on the storage, sharing and handling of family civic data

Alex Bowyer, Kyle Montague, Stuart Wheater, Ruth McGovern, Raghu Lingam, Madeline Balaam

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

21 Citations (Scopus)

Abstract

Across social care, healthcare and public policy, enabled by the "big data" revolution (which has normalized large-scale data-based decision-making), there are moves to "join up" citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-gamebased interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.

Original language	English
Title of host publication	CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems
Subtitle of host publication	Engage with CHI
Publisher	ACM
ISBN (Electronic)	9781450356206, 9781450356213
DOIs	https://doi.org/10.1145/3173574.3173710
Publication status	Published - 20 Apr 2018
Externally published	Yes
Event	2018 ACM Conference on Human Factors in Computing Systems - Palais des Congrès de Montréal, Montréal, Canada Duration: 21 Apr 2018 → 26 Apr 2018 https://chi2018.acm.org/

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings
Volume	2018-April

Conference

Conference	2018 ACM Conference on Human Factors in Computing Systems
Abbreviated title	CHI 2018
Country/Territory	Canada
City	Montréal
Period	21/04/18 → 26/04/18
Internet address	https://chi2018.acm.org/

Keywords

Big data
Boundary objects
Civic Data
Data privacy
Data security
Data sharing
Design games
Dynamic consent
Ethnographic interviews
Family Civic Data
Family design games
Family research
Healthcare
Personal data
Social care
Ubicomp
User-centered design

Access to Document

10.1145/3173574.3173710

Cite this

Bowyer, A., Montague, K., Wheater, S., McGovern, R., Lingam, R., & Balaam, M. (2018). Understanding the family perspective on the storage, sharing and handling of family civic data. In CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems: Engage with CHI (Conference on Human Factors in Computing Systems - Proceedings; Vol. 2018-April). ACM. https://doi.org/10.1145/3173574.3173710

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title = "Understanding the family perspective on the storage, sharing and handling of family civic data",

abstract = "Across social care, healthcare and public policy, enabled by the {"}big data{"} revolution (which has normalized large-scale data-based decision-making), there are moves to {"}join up{"} citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-gamebased interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.",

keywords = "Big data, Boundary objects, Civic Data, Data privacy, Data security, Data sharing, Design games, Dynamic consent, Ethnographic interviews, Family Civic Data, Family design games, Family research, Healthcare, Personal data, Social care, Ubicomp, User-centered design",

author = "Alex Bowyer and Kyle Montague and Stuart Wheater and Ruth McGovern and Raghu Lingam and Madeline Balaam",

year = "2018",

month = apr,

day = "20",

doi = "10.1145/3173574.3173710",

language = "English",

series = "Conference on Human Factors in Computing Systems - Proceedings",

publisher = "ACM",

booktitle = "CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems",

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note = "2018 ACM Conference on Human Factors in Computing Systems, CHI 2018 ; Conference date: 21-04-2018 Through 26-04-2018",

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Bowyer, A, Montague, K, Wheater, S, McGovern, R, Lingam, R & Balaam, M 2018, Understanding the family perspective on the storage, sharing and handling of family civic data. in CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems: Engage with CHI. Conference on Human Factors in Computing Systems - Proceedings, vol. 2018-April, ACM, 2018 ACM Conference on Human Factors in Computing Systems, Montréal, Canada, 21/04/18. https://doi.org/10.1145/3173574.3173710

Understanding the family perspective on the storage, sharing and handling of family civic data. / Bowyer, Alex; Montague, Kyle; Wheater, Stuart et al.
CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems: Engage with CHI. ACM, 2018. (Conference on Human Factors in Computing Systems - Proceedings; Vol. 2018-April).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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AB - Across social care, healthcare and public policy, enabled by the "big data" revolution (which has normalized large-scale data-based decision-making), there are moves to "join up" citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-gamebased interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.

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ER -

Bowyer A, Montague K, Wheater S, McGovern R, Lingam R, Balaam M. Understanding the family perspective on the storage, sharing and handling of family civic data. In CHI 2018 - Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems: Engage with CHI. ACM. 2018. (Conference on Human Factors in Computing Systems - Proceedings). doi: 10.1145/3173574.3173710

Understanding the family perspective on the storage, sharing and handling of family civic data

Abstract

Publication series

Conference

Keywords

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