Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy

Ebtisam Alabdulqader, Katy Stockwell, Kyle Montague, Dan Jackson, Andrew Monk, Lindsay Pennington, Roisin McNaney, Stephen Lindsay, Ling Wu, Patrick Olivier

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

Abstract

Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers' social support needs, and the level of commitment required to self-deliver home therapy. Based on findings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.

Original languageEnglish
Title of host publicationDIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference
Subtitle of host publicationDigital Wellbeing
EditorsFlorian `Floyd' Mueller, Stefan Greuter, Rohit Ashok Khot, Penny Sweetser, Marianna Obrist
Place of PublicationNew York, US
PublisherACM
Pages1788-1801
Number of pages14
ISBN (Electronic)9781450393584
DOIs
Publication statusPublished - 13 Jun 2022
EventDIS '22: Designing Interactive Systems Conference - Online, Online, Australia
Duration: 13 Jun 202217 Jun 2022
https://dis.acm.org/2022/

Conference

ConferenceDIS '22
Country/TerritoryAustralia
CityOnline
Period13/06/2217/06/22
Internet address

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