Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy

Ebtisam Alabdulqader; Katy Stockwell; Kyle Montague; Dan Jackson; Andrew Monk; Lindsay Pennington; Roisin McNaney; Stephen Lindsay; Ling Wu; Patrick Olivier

doi:10.1145/3532106.3533576

Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy

Ebtisam Alabdulqader, Katy Stockwell, Kyle Montague, Dan Jackson, Andrew Monk, Lindsay Pennington, Roisin McNaney, Stephen Lindsay, Ling Wu, Patrick Olivier

Computer and Information Sciences Department

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

3 Citations (Scopus)

21 Downloads (Pure)

Abstract

Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers' social support needs, and the level of commitment required to self-deliver home therapy. Based on findings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.

Original language	English
Title of host publication	DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference
Subtitle of host publication	Digital Wellbeing
Editors	Florian `Floyd' Mueller, Stefan Greuter, Rohit Ashok Khot, Penny Sweetser, Marianna Obrist
Place of Publication	New York, US
Publisher	ACM
Pages	1788-1801
Number of pages	14
ISBN (Electronic)	9781450393584
DOIs	https://doi.org/10.1145/3532106.3533576
Publication status	Published - 13 Jun 2022
Event	DIS '22: Designing Interactive Systems Conference - Online, Online, Australia Duration: 13 Jun 2022 → 17 Jun 2022 https://dis.acm.org/2022/ https://dl.acm.org/doi/proceedings/10.1145/3532106

Conference

Conference	DIS '22
Abbreviated title	DIS '22
Country/Territory	Australia
City	Online
Period	13/06/22 → 17/06/22
Internet address	https://dis.acm.org/2022/ https://dl.acm.org/doi/proceedings/10.1145/3532106

Keywords

Caregiver
Cerebral Palsy
Children
Coaching
Parents
Therapy

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10.1145/3532106.3533576Licence: CC BY

3532106.3533576Final published version, 1.52 MBLicence: CC BY

Cite this

Alabdulqader, E., Stockwell, K., Montague, K., Jackson, D., Monk, A., Pennington, L., McNaney, R., Lindsay, S., Wu, L., & Olivier, P. (2022). Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy. In F. F. Mueller, S. Greuter, R. A. Khot, P. Sweetser, & M. Obrist (Eds.), DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing (pp. 1788-1801). ACM. https://doi.org/10.1145/3532106.3533576

Alabdulqader, Ebtisam ; Stockwell, Katy ; Montague, Kyle et al. / Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy. DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing. editor / Florian `Floyd' Mueller ; Stefan Greuter ; Rohit Ashok Khot ; Penny Sweetser ; Marianna Obrist. New York, US : ACM, 2022. pp. 1788-1801

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title = "Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy",

abstract = "Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers' social support needs, and the level of commitment required to self-deliver home therapy. Based on findings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.",

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author = "Ebtisam Alabdulqader and Katy Stockwell and Kyle Montague and Dan Jackson and Andrew Monk and Lindsay Pennington and Roisin McNaney and Stephen Lindsay and Ling Wu and Patrick Olivier",

note = "Funding information: Research funded by Sparks, The Children's Medical Research Charity (14NCL01).; DIS '22 : Designing Interactive Systems Conference, DIS '22 ; Conference date: 13-06-2022 Through 17-06-2022",

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Alabdulqader, E, Stockwell, K, Montague, K, Jackson, D, Monk, A, Pennington, L, McNaney, R, Lindsay, S, Wu, L & Olivier, P 2022, Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy. in FF Mueller, S Greuter, RA Khot, P Sweetser & M Obrist (eds), DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing. ACM, New York, US, pp. 1788-1801, DIS '22, Online, Australia, 13/06/22. https://doi.org/10.1145/3532106.3533576

Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy. / Alabdulqader, Ebtisam; Stockwell, Katy; Montague, Kyle et al.
DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing. ed. / Florian `Floyd' Mueller; Stefan Greuter; Rohit Ashok Khot; Penny Sweetser; Marianna Obrist. New York, US: ACM, 2022. p. 1788-1801.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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T1 - Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy

AU - Alabdulqader, Ebtisam

AU - Stockwell, Katy

AU - Montague, Kyle

AU - Jackson, Dan

AU - Monk, Andrew

AU - Pennington, Lindsay

AU - McNaney, Roisin

AU - Lindsay, Stephen

AU - Wu, Ling

AU - Olivier, Patrick

N1 - Funding information: Research funded by Sparks, The Children's Medical Research Charity (14NCL01).

PY - 2022/6/13

Y1 - 2022/6/13

N2 - Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers' social support needs, and the level of commitment required to self-deliver home therapy. Based on findings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.

AB - Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers' social support needs, and the level of commitment required to self-deliver home therapy. Based on findings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.

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M3 - Conference contribution

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EP - 1801

BT - DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference

A2 - Mueller, Florian `Floyd'

A2 - Greuter, Stefan

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A2 - Obrist, Marianna

PB - ACM

CY - New York, US

T2 - DIS '22

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ER -

Alabdulqader E, Stockwell K, Montague K, Jackson D, Monk A, Pennington L et al. Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy. In Mueller FF, Greuter S, Khot RA, Sweetser P, Obrist M, editors, DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing. New York, US: ACM. 2022. p. 1788-1801 Epub 2022 Jun 13. doi: 10.1145/3532106.3533576

Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy

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