TY - JOUR
T1 - Working towards inclusion
T2 - Creating technology for and with people living with mild cognitive impairment or dementia who are employed
AU - Shastri, Karan
AU - Boger, Jennifer
AU - Marashi, Sheida
AU - Astell, Arlene
AU - Dove, Erica
AU - Nedlund, Ann-Charlotte
AU - Mäki-Petäjä-Leinonen, Anna
AU - Nygård, Louise
N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the JTC 2017 as part of the Joint Programming Initiative (JPI) “More Years, Better Lives” (JPI MYBL) initiative. JPI MYBL is supported by J-Age II, which is funded by Horizon 2020, the EU Framework Program for Research and Innovation, under Grant Agreement #643850.
PY - 2022/2/1
Y1 - 2022/2/1
N2 - Earlier diagnosis and longer working careers is resulting in more individuals being identified as having Mild Cognitive Impairment or Early Onset Dementia (MCI/EOD) when they are still in the workforce. While there is growing interest in the dementia research community and beyond to develop technologies to support people with dementia, the use of technology for and by people with MCI/EOD in the workplace has had very little attention. This paper presents a two-part study involving interviews and participatory sessions to begin to understand the workplace experiences and the role of technology among people living with MCI/EOD. We present our findings from working with seven people with MCI/EOD and two care partners to explore technology design. Our results indicate several similarities as well as a few differences between MCI/EOD and later-onset dementia with respect to challenges using technology and design considerations for supporting engagement and use of technology. Lessons learned through the process of working with people with MCI/EOD through participatory methods is presented along with recommendations to foster an inclusive, respectful, and empowering experience for participants with MCI/EOD.
AB - Earlier diagnosis and longer working careers is resulting in more individuals being identified as having Mild Cognitive Impairment or Early Onset Dementia (MCI/EOD) when they are still in the workforce. While there is growing interest in the dementia research community and beyond to develop technologies to support people with dementia, the use of technology for and by people with MCI/EOD in the workplace has had very little attention. This paper presents a two-part study involving interviews and participatory sessions to begin to understand the workplace experiences and the role of technology among people living with MCI/EOD. We present our findings from working with seven people with MCI/EOD and two care partners to explore technology design. Our results indicate several similarities as well as a few differences between MCI/EOD and later-onset dementia with respect to challenges using technology and design considerations for supporting engagement and use of technology. Lessons learned through the process of working with people with MCI/EOD through participatory methods is presented along with recommendations to foster an inclusive, respectful, and empowering experience for participants with MCI/EOD.
KW - early-onset dementia
KW - mild cognitive impairment
KW - technology
KW - user-centred design
KW - workplace
UR - http://www.scopus.com/inward/record.url?scp=85118787140&partnerID=8YFLogxK
U2 - 10.1177/14713012211051885
DO - 10.1177/14713012211051885
M3 - Article
C2 - 34749536
AN - SCOPUS:85118787140
SN - 1471-3012
VL - 21
SP - 556
EP - 578
JO - Dementia
JF - Dementia
IS - 2
ER -